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X-WR-CALNAME:Autoinflammatory UK
X-ORIGINAL-URL:http://www.autoinflammatory.uk
X-WR-CALDESC:Events for Autoinflammatory UK
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TZOFFSETFROM:+0000
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DTSTART:20190101T000000
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DTSTART;TZID=UTC:20190923T090000
DTEND;TZID=UTC:20190923T173000
DTSTAMP:20260421T121843
CREATED:20190826T081453Z
LAST-MODIFIED:20190827T223643Z
UID:1376-1569229200-1569259800@www.autoinflammatory.uk
SUMMARY:RAREsummit19
DESCRIPTION:RAREsummit19 is a 1 day summit focusing on patient centricity in rare disease – mastery\, opportunities and trends in the drug development process\, healthcare and assistive technologies. \nWhat if we were able to share information with the power to revolutionise the current rare disease landscape? What if we could provide solutions to patients now\, answering their pressing questions about their disease\, care\, and treatment? What if we could ensure that patients and advocates played an equal and vital role in the development of drugs\, assistive technologies and healthcare? Rare disease patients and their families are tired of waiting for answers and the slow pace of change. They want to be involved and share their lived experiences to help companies\, researchers and healthcare professionals find answers and solutions. Hear from\,  learn from and engage in cross-sector activities with a range of stakeholders: patients; patient advocacy groups; researchers; health care professionals and companies who are leading the way in pioneering partnerships to accelerate change. \nJoin us at the Wellcome Genome Campus: a hub of life-changing science. We think it’s the perfect venue to make progress for rare diseases. \n
URL:http://www.autoinflammatory.uk/event/raresummit19/
LOCATION:Wellcome Genome Campus Conference Centre\, Hinxton\, Cambridge\, England\, CB10 1RQ\, United Kingdom
CATEGORIES:Rare Disease Conferences
ATTACH;FMTTYPE=image/png:http://www.autoinflammatory.uk/wp-content/uploads/2019/08/Rare-Summit-2019-logo.png
ORGANIZER;CN="Cambridge%20Rare%20Disease%20Network":MAILTO:jo@camraredisease.org
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