Since 2015 patients with any of the autoinflammatory/periodic fever syndromes, such as PFAPA, CRMO, CAPS, HIDS, FMF, TRAPS, SURFS, join with patient groups and others, to work together to fundraise for research and education and bring more awareness to these very rare diseases.
Why August?
August is generally the hottest month for many regions in the Northern Hemisphere. So it seems a perfect month to raise awareness about these syndromes that cause intense systemic inflammation and for many very high fevers that may rival the high temperatures in your area. Also, your elected members are usually back in their constituency and available for lobbying.
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