We are now in the position to create an all new website. We hope this site will become a resource not only for our community but for the wider #RareDisease community and people looking for more information on their symptoms where answers are vague for and from the medical community who don’t see these types of conditions very often.
The majority of the content on this site has been requested by members of our community so they have a portal to go to for the information they may require in their daily lives. We also hope to raise awareness in the medical and wider community of rare autoinflammatory diseases.
We will have a blog where articles of interest to the rare autoinflammatory community and indeed wider rare disease community will be posted. If you have information that you feel would be of interest, please contact firstname.lastname@example.org or use our contact form here.